The Structure of the Sense of Isolation Among Deinstitutionalized Disabled People: Relationship between Health Status, Institutionalization Experience, Perception of Support Systems, Social Capital, and Isolation

Abstract

This study examined a sense of isolation, which was reported to be the main difficulty that deinstitutionalized disabled people experienced in the community after leaving institutions, based on Bourdieu's capital theory, and established key variables—such as health status, institutionalization experience, perception of support systems, and social capital—and verified their structural relationships. The data were collected from June 1 to September 10, 2023, through a one-on-one, face-to-face survey conducted by trained interviewers. A total of 365 deinstitutionalized disabled people aged 18 and older participated in the survey. Our analysis used data from 310 people, excluding outliers, missing values, and insincere responses. The explanatory power of the final research model was 55.9% for perception of support systems, 90.7% for social capital, and 46.8% for isolation. Out of 17 hypotheses tested, 11 were supported. The analysis revealed that the health status of deinstitutionalized disabled people had a significant direct effect on perception of support systems, social capital, and isolation. Past experience of living in an institutional setting was found to have a significant direct effect on perception of support systems and social capital. In addition, perception of support systems had a significant direct effect on social capital and isolation. Health status and the experience of institutionalized living were found to significantly mediate the effects on social capital and isolation. Ultimately, this study challenges the common belief that people with disabilities experience loneliness simply because they have left institutions, and reveals a structural pathway through which the experience of institutionalized living diminishes perception of national systems, which in turn deepens a sense of isolation.